Please note: The NHS is considering introducing screening for severe combined immunodeficiency (SCID). SCID makes it hard to fight off infections like pneumonia and meningitis, and you may have heard of some babies with SCID having to live in a bubble after 3 months of age.
Screening would help to find and treat babies with this condition earlier. The test for SCID uses the same blood taken at the heel prick. No further blood sample will usually be taken. Screening for SCID is being offered in some babies to see how it could best be introduced across England. This is to inform you that babies born at Lewisham, Greenwich and the PRUH may be offered this additional screening as part of the New-born bloodspot screening carried out on day 5.
This will commence on the 06/09/2021.
You will be able to access further information here: SCID screening: helping you decide if you want this for your baby – GOV.UK (www.gov.uk). Alternatively you may wish to discuss with your Midwife or Health Visitor.
The eRedbook is the digital version of the paper red book given to parents when a baby is born.
The eRedbook helps parents find out more about their baby’s development through nhs.uk guidance articles tailored to their baby’s age and allows parents to record and track their baby’s weight and create a safe, long term record of their baby’s health and development. It also provides information on what tests, checks, and immunisations are offered as part of the Healthy Child Programme. You can use your eRedbook to record information about your pregnancy, baby or child.
You can access eRedbook by downloading the eRedbook app from the play or app store or by visiting the eRedbook website. The first time you visit the eRedbook app or website you will need to create an account using your NHS Login*. Parents must create their accounts using NHS Login to receive NHS child health data in their eRedbook. Click ‘register’ on the app or visit the registration page of the website here.
*NHS login is a new way to log in to health websites and apps. If you do not have an NHS login you will need to set one up, and enter some information to prove who you are. This is to keep your health information secure. To set up your NHS login go to: access.login.nhs.uk/enter-email. (If this link doesn’t take you to the enter-email page, please register via the eRedbook website.)
If you have signed up antenatally using NHS Login and you are the birth mother of your baby, your eRedbook will automatically populate with your baby’s information when your baby is born. If you have signed up postnatally or are the primary carer and not the birth mother of the baby, the account will need to be verified by a Health Visitor or Midwife to connect it to your baby’s record.
As a parent, you only need to have one eRedbook account; within that account you can add all your children. Only one parent can be connected directly to a child’s account in eRedbook. It is recommended that the primary care-giver is the one to connect their account and then they share it with others. The primary caregiver can share the record with others (partner, grandparents, etc.) using record sharing as long as they sign up for an eRedbook account. You can stop sharing your child’s record at any time. Do not share your login details with anyone.
Your eRedbook belongs to you. You can write in your child’s record at any time. If you have shared your child’s record with others and given them permission to write in it, they can add information too.
As a parent you are encouraged to record your baby’s weight into eRedbook. To do this select the graph icon on the left bar in the child’s eRedbook. Enter the weight on the next screen. It will appear as a circle on the graph. If a Health Visitor flows a weight to your eRedbook it will appear as a square.
Any vaccination information that flows from the NHS to your eRedbook will appear on the Immunisations tab. For vaccinations that do not appear in eRedbook, you can create a manual entry:
Select the Add Note icon on the left bar in the child’s eRedbook. Select Immunisations in the Note Category. Write the note or upload a photo of the Vaccination record from the paper red book.
At present, the eRedbook is a digital addition to the paper red book but in time it will replace it for those who choose to have a digital record. The paper red book will always remain an option for parents who do not want to go electronic for whatever reason.